I have been on 'vacation', but others are writing about aphasia....
After a stroke
Thursday, August 11, 2011
Wednesday, July 6, 2011
Review of 'Aphasia (2010)'
Goddess Aphasiadite invited Kevin Cooper to write a review of 'Aphasia, the movie'. Kevin is a movie guru that I ask about movies.
Aphasia (2010)
One in approximately six hundred and forty-nine thousand; this is the probability of being dealt a Royal Flush -- a perfect hand in a game of straight poker. To be dealt such a hand would be considered lucky in every sense of the word, but life in itself is a gamble and with that comes many opportunities for loss & gain. So if you're old enough to be reading the words on this page, then chances are that you've already lived long enough to know that there is more than one type of luck in this oversized Bingo Hall that we call life. And it is this "other luck" that stroke survivor Carl McIntyre has such an intimate relationship with.
In June of 2005, Mr. McIntyre unexpectedly lost his ability to speak, read & write. But to put it more aptly, we should say that these abilities were taken from him as the result of a massive stroke that left 80% of his left hemisphere of his brain damaged. Or as Carl himself would put it, he won "Life's Lottery".
The film Aphasia (written & directed by Jim Gloster) focuses on coming to terms with these "winnings", and stars Carl McIntyre to give a first-hand perspective on what living with Aphasia really means. But more importantly, the film focuses on creating an awareness of this condition and how a person can rise above it.
The movie begins with our humble narrator playing with his children. When tragedy strikes, it is here that the film immediately (and effectively) conveys the helplessness of the main character to the audience as Carl spends nearly forty minutes immobilized on the floor -- his family unaware, and therefore unable to help him. The scene itself only runs for the first five minutes of the film, but it feels like the audience is sharing the entire forty minutes on the floor with Carl while gasps & exasperated sighs resound from almost every seat in the theatre.
Thankfully, Carl eventually receives the medical attention that he needs and so begins his journey into the rehabilitation process.
Like most journeys in our lives, the road can be long & unpredictable; but a healthy combination of determination & stubbornness is oftentimes what separates success from failure. Throughout the remainder of the film, Carl candidly shows us this success scene-after-scene, and frequently leaves the audience with a feeling of true inspiration. Whether he’s enunciating a familiar word for the first time (word on the street is that “shit” and “dick” are pretty popular), or achieving another milestone in his progress, the film never fails to instil us with the same hope that his own family holds for him. The movie consistently avoids being preachy or heavy-handed with its message, and a concise running time keeps viewers engaged without overstaying its welcome.
Immediately following the screening of the film, the audience was delighted to discover that Mr. McIntyre was actually in the very same room for his Canadian debut. Thereafter, much time was spent getting to know more about Carl’s progress, as well as his dedication to the cause. To say the least, the hurdles he has overcome is a remarkable achievement all its own; but to say the most, his progress has been nothing short of a miracle.
Thomas Edison once told us that “many of life’s failures are people who do not realize how close they were to success when they gave up”. Carl McIntyre did not give up. And this is an example for not only those who are living with Aphasia, but also for those who are simply living.
Special thanks to Judy Arbique & Anne Rendell, who gave everyone the opportunity to see this wonderful film.
- Kevin M. Cooper, WGA/WGC -
Aphasia (2010)
One in approximately six hundred and forty-nine thousand; this is the probability of being dealt a Royal Flush -- a perfect hand in a game of straight poker. To be dealt such a hand would be considered lucky in every sense of the word, but life in itself is a gamble and with that comes many opportunities for loss & gain. So if you're old enough to be reading the words on this page, then chances are that you've already lived long enough to know that there is more than one type of luck in this oversized Bingo Hall that we call life. And it is this "other luck" that stroke survivor Carl McIntyre has such an intimate relationship with.
In June of 2005, Mr. McIntyre unexpectedly lost his ability to speak, read & write. But to put it more aptly, we should say that these abilities were taken from him as the result of a massive stroke that left 80% of his left hemisphere of his brain damaged. Or as Carl himself would put it, he won "Life's Lottery".
The film Aphasia (written & directed by Jim Gloster) focuses on coming to terms with these "winnings", and stars Carl McIntyre to give a first-hand perspective on what living with Aphasia really means. But more importantly, the film focuses on creating an awareness of this condition and how a person can rise above it.
The movie begins with our humble narrator playing with his children. When tragedy strikes, it is here that the film immediately (and effectively) conveys the helplessness of the main character to the audience as Carl spends nearly forty minutes immobilized on the floor -- his family unaware, and therefore unable to help him. The scene itself only runs for the first five minutes of the film, but it feels like the audience is sharing the entire forty minutes on the floor with Carl while gasps & exasperated sighs resound from almost every seat in the theatre.
Thankfully, Carl eventually receives the medical attention that he needs and so begins his journey into the rehabilitation process.
Like most journeys in our lives, the road can be long & unpredictable; but a healthy combination of determination & stubbornness is oftentimes what separates success from failure. Throughout the remainder of the film, Carl candidly shows us this success scene-after-scene, and frequently leaves the audience with a feeling of true inspiration. Whether he’s enunciating a familiar word for the first time (word on the street is that “shit” and “dick” are pretty popular), or achieving another milestone in his progress, the film never fails to instil us with the same hope that his own family holds for him. The movie consistently avoids being preachy or heavy-handed with its message, and a concise running time keeps viewers engaged without overstaying its welcome.
Immediately following the screening of the film, the audience was delighted to discover that Mr. McIntyre was actually in the very same room for his Canadian debut. Thereafter, much time was spent getting to know more about Carl’s progress, as well as his dedication to the cause. To say the least, the hurdles he has overcome is a remarkable achievement all its own; but to say the most, his progress has been nothing short of a miracle.
Thomas Edison once told us that “many of life’s failures are people who do not realize how close they were to success when they gave up”. Carl McIntyre did not give up. And this is an example for not only those who are living with Aphasia, but also for those who are simply living.
Special thanks to Judy Arbique & Anne Rendell, who gave everyone the opportunity to see this wonderful film.
- Kevin M. Cooper, WGA/WGC -
Wednesday, June 29, 2011
"Life is Larger"
Awesome! I saw this video 1 year after my stroke, when Anne and I visited the Aphasia Institute in September 2009. "Life is Larger" gave me chills....it is simple but so moving...and, I met some of these people when I was there.
So glad that I was share with you...thank-you Aphasia Institute! Happy 30th birthday!
Life is Larger
The Aphasia Institute has good services and supports...check it out.
Aphasia Institute
So glad that I was share with you...thank-you Aphasia Institute! Happy 30th birthday!
Life is Larger
The Aphasia Institute has good services and supports...check it out.
Aphasia Institute
Eye-opening message
On Sunday June 26, 2011 one of the participants at the 'Aphasia, the movie' on June 15, 2011 wrote to the Voice of the People (Chronicle Herald, Nova Scotia). This was her review....
I would like to thank the Nova Scotia Aphasia Association for bringing Carl Macintyre’s presentation and movie Aphasia to Halifax this month. The event was well-attended, informative and enjoyable. Carl Macintyre is a charming man, a stroke survivor whose persistence and love of life have helped him overcome the communication (speech) barrier, aphasia.
His message was an eye-opener for all in attendance, not only those living with aphasia. First, life can change in an instant so be thankful for the important things: laughter, family and good friends. Second, why are we all in such a rush? We work fast, eat fast, and SPEAK fast. We need to slow down, consider others and live each moment fully before it passes.
I highly recommend a booking of Carl’s presentation for all health care providers and affiliates of the Heart and Stroke Foundation.
Cindy Beaton, Halifax
Eye-opening message
I would like to thank the Nova Scotia Aphasia Association for bringing Carl Macintyre’s presentation and movie Aphasia to Halifax this month. The event was well-attended, informative and enjoyable. Carl Macintyre is a charming man, a stroke survivor whose persistence and love of life have helped him overcome the communication (speech) barrier, aphasia.
His message was an eye-opener for all in attendance, not only those living with aphasia. First, life can change in an instant so be thankful for the important things: laughter, family and good friends. Second, why are we all in such a rush? We work fast, eat fast, and SPEAK fast. We need to slow down, consider others and live each moment fully before it passes.
I highly recommend a booking of Carl’s presentation for all health care providers and affiliates of the Heart and Stroke Foundation.
Cindy Beaton, Halifax
Eye-opening message
Sunday, June 19, 2011
"What happens, happens to two".....or more
When I was finding to learn everything about aphasia...I'm one of those people who need to understand everything...why, why, why, why? I'm found 'Aphasia, the movie' and couldn't believe there's was a movie about aphasia! Where was it? When was it made? How could I miss in the 'googling' sessions that I had! I had to see it...so I researched everything about Carl and the movie!
When I realized that the Aphasia, the movie wasn't in the theatres...anywhere. I started to plan having Aphasia, the movie to have come to Halifax showing to people who have aphasia and their circle of partners, family, neighbours, community, caregivers, health professionals who support and work with them, schools of healthcare students who will support and work with them, and decision-makers who decide the services that will help people who have aphasia to be the best that they can be!
Naive, I know...thinking that every Nova Scotians would want to see the movie, as much as I wanted to see it. WOW, I'm so happy that Aphasia wasn't in the theatres, because the movie comes with Carl!
But, they should see this movie! There are powerful messages concerning life-changing events and how it affects the ONE AND the circle of the one. The one is Carl, an actor, teacher and salesman, but also husband, father, friend. Elizabeth, the wife, is affect aphasia too...she is in the circle with Carl. Her best friend. His best friend. Now, that's all different...now, she is the parent. Carl, now, the child. Their journey through being a team... again.
I would love to meet Elizabeth. Aphasia, the movie is both of their stories...Elizabeth isn't the supporting actress in the story. She is co-starring in this story. "What happens to one, what to two" or more! Your children, grandchildren, family, friends, colleagues, neighbours...your circle of life.
This true story shows building a new life from the ashes. Carl and Elizabeth, the Phoenixes!
Carl McIntyre is a Champion of aphasia! Actually, Carl is a Champion of any life-changing event. He is inspiring for any person who has to face challenges that a life-changing event provides. Carl is charismatic, honest, anger about HIS frailty and his experiences with living with aphasia.
Carl and his friends portrayed this wonderfully in Aphasia, the movie...if something came from his Carl et al stroke...it is this movie. I can't say enough about this movie. Really you must experience Aphasia, the movie and Carl's presentation...this is an event! If you had a life-changing event or if you know someone who had a life-changing event or if you work in the professions of ....during, after life-changing events you need to see with movie and Carl's presentation. This portrayal of Carl's life-changing event was moving, humourous, sensitive. It feels that you are there with Carl's journey to make a new life through the sadness, anger, frustration, humility and relationships...his aphasia. Walk with Carl.
Take away message from 'Aphasia, the movie': Hope and determination.
Recommendations:
1. Experience Carl and Aphasia, the movie!
2. International Aphasia Groups, Clinics and Conferences: Book 'Aphasia, the movie' and Carl McIntyre (http://www.carlmcintyre.com)
3. Schools of healthcare professionals, SLP Schools, Schools Social Work, Health Professionals and SLP Conferences: Book 'Aphasia, the movie' and Carl McIntyre (http://www.carlmcintyre.com)
4.'Aphasia, the movie' should be in everything healthcare library, school of health professions, rehabilitative centres, school of rehabilitative centres, public library...Have I missed something? It is an important statement..."What happens, happens to two" or more.
When I realized that the Aphasia, the movie wasn't in the theatres...anywhere. I started to plan having Aphasia, the movie to have come to Halifax showing to people who have aphasia and their circle of partners, family, neighbours, community, caregivers, health professionals who support and work with them, schools of healthcare students who will support and work with them, and decision-makers who decide the services that will help people who have aphasia to be the best that they can be!
Naive, I know...thinking that every Nova Scotians would want to see the movie, as much as I wanted to see it. WOW, I'm so happy that Aphasia wasn't in the theatres, because the movie comes with Carl!
But, they should see this movie! There are powerful messages concerning life-changing events and how it affects the ONE AND the circle of the one. The one is Carl, an actor, teacher and salesman, but also husband, father, friend. Elizabeth, the wife, is affect aphasia too...she is in the circle with Carl. Her best friend. His best friend. Now, that's all different...now, she is the parent. Carl, now, the child. Their journey through being a team... again.
I would love to meet Elizabeth. Aphasia, the movie is both of their stories...Elizabeth isn't the supporting actress in the story. She is co-starring in this story. "What happens to one, what to two" or more! Your children, grandchildren, family, friends, colleagues, neighbours...your circle of life.
This true story shows building a new life from the ashes. Carl and Elizabeth, the Phoenixes!
Carl McIntyre is a Champion of aphasia! Actually, Carl is a Champion of any life-changing event. He is inspiring for any person who has to face challenges that a life-changing event provides. Carl is charismatic, honest, anger about HIS frailty and his experiences with living with aphasia.
Carl and his friends portrayed this wonderfully in Aphasia, the movie...if something came from his Carl et al stroke...it is this movie. I can't say enough about this movie. Really you must experience Aphasia, the movie and Carl's presentation...this is an event! If you had a life-changing event or if you know someone who had a life-changing event or if you work in the professions of ....during, after life-changing events you need to see with movie and Carl's presentation. This portrayal of Carl's life-changing event was moving, humourous, sensitive. It feels that you are there with Carl's journey to make a new life through the sadness, anger, frustration, humility and relationships...his aphasia. Walk with Carl.
Take away message from 'Aphasia, the movie': Hope and determination.
Recommendations:
1. Experience Carl and Aphasia, the movie!
2. International Aphasia Groups, Clinics and Conferences: Book 'Aphasia, the movie' and Carl McIntyre (http://www.carlmcintyre.com)
3. Schools of healthcare professionals, SLP Schools, Schools Social Work, Health Professionals and SLP Conferences: Book 'Aphasia, the movie' and Carl McIntyre (http://www.carlmcintyre.com)
4.'Aphasia, the movie' should be in everything healthcare library, school of health professions, rehabilitative centres, school of rehabilitative centres, public library...Have I missed something? It is an important statement..."What happens, happens to two" or more.
Sunday, June 5, 2011
Letter to the Editor Published!
Aphasia Awareness letter to the editor published on Sunday, June 5 2011 in the Chronicle Herald in Halifax, NS Canada. AND, information in the Halifax Magazine (page 12).
Go Nova Scotia Aphasia Association on your Aphasia Awareness!
Go Nova Scotia Aphasia Association on your Aphasia Awareness!
Wednesday, June 1, 2011
IT'S JUNE!
June is Aphasia Awareness Month!!
14 sleeps before 'Aphasia, the movie' comes to Halifax. Get your tickets, now!
I started a letter to the editor in our local paper. 792 words. Hmmm, the instructions, which I read AFTER I wrote the letter of 792 words, says "Letters should be no more than 200 words...". :(
Those 592 words were good stuff! What to do! Goddess Aphasiadite presents the epic 'Letter to the Editor'!
I have aphasia and apraxia. I’m one of the approximately 450 Nova Scotians who acquired aphasia in 2008. I’m not alone. EACH year, approximately 450 Nova Scotians will acquired aphasia and belong to our aphasic community!
So, what IS aphasia? Aphasia is an acquired language disorder caused by brain injury. About 30% stroke survivors have aphasia. I had a stroke three years ago in October, just before my 50th birthday. For my early birthday present, the Universe slapped me with a ‘clot’ up the side of my head! THAT clot lodged in my middle cerebral artery in my left cerebral hemisphere (brain) blocking the pathway to my language centre. Neurons in my language centre gasped for oxygen: some died and some were injured.
BUT, I was lucky! My friend, Anne, who was there when I had my stroke was quick to call ‘911’. And, the paramedics were fast to arrive at the cottage in East Jeddore and deliver me to Dartmouth General where I received a ‘clot buster’ drug (‘Draino’, as Anne referred to it). I probably would have MORE problems and challenges IF I had not been taken to the hospital within the 4 hour time frame to get the drug to dissolve the clot in my artery.
What does my language disorder look like? I’ll discuss aphasia and leave out apraxia for now…after all June is Aphasia Awareness Month! Language is a communication tool comprised by speech, reading and writing. What would you do if you didn’t have those tools and skills? I started there just after my stroke. AND, what if you couldn’t understand others who do use those communication tools. I started there just after my stroke.
When Anne realized something was wrong with me, she asked me what was wrong, but I didn’t understand what she was saying. I knew she was upset by her tone and body language, when I tried to tell her that everything was okay, I couldn’t speak. I tried…no sound. I tried again, then pushed air through my vocal chords and successfully said ‘uh’. So, I decided to stand up, showing that I was okay! OOPS! From there, I dropped to the floor…seems my right side was paralyzed!
NOW, my right side works, not perfectly but you wouldn’t know that by sight. And, I have aphasia. I work hard every day to better my speech, my reading and my writing. Now, Anne says, sarcastically, “Remember, when she couldn’t speak!” :)
Some aphasics are challenged only by speech, some others are challenged with speech, reading and writing. And others are challenged with understanding what YOU said, the language that you use, and how fast you speak. My ears hear, but my auditory cortex of my brain can’t make sense of the noises that you speak! So, don’t speak louder, it won’t matter. Slow down! Language is a very slow dance. Dance with me.
I’m a volunteer with the NEW Nova Scotia Aphasia Association (NSAA). On June 15, 2011, the NSAA will present ‘Aphasia, the movie’ at Empire Theatres Park Lane, 5657 Spring Garden Rd, Halifax at 7:00pm. To get information about the Aphasia Association and the movie, email nsaa@bellaliant.net or call (902) 445-4960 or visit our Facebook page (Nova Scotia Aphasia Association).
For information on Carl and the trailer for ‘Aphasia, the movie’, see:
Aphasia, the movie
14 sleeps before 'Aphasia, the movie' comes to Halifax. Get your tickets, now!
I started a letter to the editor in our local paper. 792 words. Hmmm, the instructions, which I read AFTER I wrote the letter of 792 words, says "Letters should be no more than 200 words...". :(
Those 592 words were good stuff! What to do! Goddess Aphasiadite presents the epic 'Letter to the Editor'!
I have aphasia and apraxia. I’m one of the approximately 450 Nova Scotians who acquired aphasia in 2008. I’m not alone. EACH year, approximately 450 Nova Scotians will acquired aphasia and belong to our aphasic community!
So, what IS aphasia? Aphasia is an acquired language disorder caused by brain injury. About 30% stroke survivors have aphasia. I had a stroke three years ago in October, just before my 50th birthday. For my early birthday present, the Universe slapped me with a ‘clot’ up the side of my head! THAT clot lodged in my middle cerebral artery in my left cerebral hemisphere (brain) blocking the pathway to my language centre. Neurons in my language centre gasped for oxygen: some died and some were injured.
BUT, I was lucky! My friend, Anne, who was there when I had my stroke was quick to call ‘911’. And, the paramedics were fast to arrive at the cottage in East Jeddore and deliver me to Dartmouth General where I received a ‘clot buster’ drug (‘Draino’, as Anne referred to it). I probably would have MORE problems and challenges IF I had not been taken to the hospital within the 4 hour time frame to get the drug to dissolve the clot in my artery.
What does my language disorder look like? I’ll discuss aphasia and leave out apraxia for now…after all June is Aphasia Awareness Month! Language is a communication tool comprised by speech, reading and writing. What would you do if you didn’t have those tools and skills? I started there just after my stroke. AND, what if you couldn’t understand others who do use those communication tools. I started there just after my stroke.
When Anne realized something was wrong with me, she asked me what was wrong, but I didn’t understand what she was saying. I knew she was upset by her tone and body language, when I tried to tell her that everything was okay, I couldn’t speak. I tried…no sound. I tried again, then pushed air through my vocal chords and successfully said ‘uh’. So, I decided to stand up, showing that I was okay! OOPS! From there, I dropped to the floor…seems my right side was paralyzed!
NOW, my right side works, not perfectly but you wouldn’t know that by sight. And, I have aphasia. I work hard every day to better my speech, my reading and my writing. Now, Anne says, sarcastically, “Remember, when she couldn’t speak!” :)
Some aphasics are challenged only by speech, some others are challenged with speech, reading and writing. And others are challenged with understanding what YOU said, the language that you use, and how fast you speak. My ears hear, but my auditory cortex of my brain can’t make sense of the noises that you speak! So, don’t speak louder, it won’t matter. Slow down! Language is a very slow dance. Dance with me.
I’m a volunteer with the NEW Nova Scotia Aphasia Association (NSAA). On June 15, 2011, the NSAA will present ‘Aphasia, the movie’ at Empire Theatres Park Lane, 5657 Spring Garden Rd, Halifax at 7:00pm. To get information about the Aphasia Association and the movie, email nsaa@bellaliant.net or call (902) 445-4960 or visit our Facebook page (Nova Scotia Aphasia Association).
For information on Carl and the trailer for ‘Aphasia, the movie’, see:
Aphasia, the movie
Monday, May 23, 2011
The Tickets are Ready for 'Hope is a four letter word'!
I haven't been active with my blog. I've been emailing, making posters and planning for our Trivia Fundraising AND making and printing tickets for 'Hope if a four letter word'. Now, the tickets are ready to sell!!! The Nova Scotia Aphasia Association and the Heart and Stroke Foundation presents 'Hope is a four letter word' on Wednesday, June 15 at 7:00 pm. Tickets $20, doors open at 6:00 pm.
I had to change our venue from the Spatz Theatre to the Empire 8 Park Lane Theatres, Spring Garden Road, Halifax. That posed a problem for us...800 seats in the Spatz Theatre, only 300 seats in Empire 8 Park Lane! So, get your tickets early before they are sold out!
To get your tickets, call (902) 445-4960 or email nsaa@bellaliant.com OR come to Trivia Fundraiser - The Rematch! Saturday, May 28th 2-4pm.
Winston’s Pub (278 Lacewood Dr., Halifax).
The hour-long “Hope is a Four Letter Word” presentation begins with a 40 minute film, “Aphasia”, followed by a humorous and moving presentation in which Carl McIntyre (star of the movie) explains the process of coming to terms with his condition and making positive and inspired decisions about his new life and future.
“Hope is a Four Letter Word”
Empire 8 Park Lane, 5657 Spring Garden Rd., Halifax
June 15, 2011: 7:00 pm, doors open at 6:00
Tickets can be purchased at the door: $20 (cash or cheque).
Only 300 seats: buy tickets early!
Tickets can also be reserved at nsaa@bellaliant.net or (902) 445-4960
Carl McIntyre
Aphasia, the movie
I had to change our venue from the Spatz Theatre to the Empire 8 Park Lane Theatres, Spring Garden Road, Halifax. That posed a problem for us...800 seats in the Spatz Theatre, only 300 seats in Empire 8 Park Lane! So, get your tickets early before they are sold out!
To get your tickets, call (902) 445-4960 or email nsaa@bellaliant.com OR come to Trivia Fundraiser - The Rematch! Saturday, May 28th 2-4pm.
Winston’s Pub (278 Lacewood Dr., Halifax).
The hour-long “Hope is a Four Letter Word” presentation begins with a 40 minute film, “Aphasia”, followed by a humorous and moving presentation in which Carl McIntyre (star of the movie) explains the process of coming to terms with his condition and making positive and inspired decisions about his new life and future.
“Hope is a Four Letter Word”
Empire 8 Park Lane, 5657 Spring Garden Rd., Halifax
June 15, 2011: 7:00 pm, doors open at 6:00
Tickets can be purchased at the door: $20 (cash or cheque).
Only 300 seats: buy tickets early!
Tickets can also be reserved at nsaa@bellaliant.net or (902) 445-4960
Carl McIntyre
Aphasia, the movie
Tuesday, April 12, 2011
Sarah Scott Update
It has been 18 months from Sarah Scott's stroke at the age of 18. Sarah arrived at college for her first class. She opened her book and read aloud to the class. Then, she lost her ability to speak. She had a stroke...at the year of 18!
Sarah and her Mom put a video on You-Tube after 9 months from her stroke.
Sarah Scott 1
Then, they did an update on Sarah progess...
Sarah Scott Update
Sarah, you go girl!
Read more:
Sarah and her Mom put a video on You-Tube after 9 months from her stroke.
Sarah Scott 1
Then, they did an update on Sarah progess...
Sarah Scott Update
Sarah, you go girl!
Read more:
Plateau: Nemesis!
If you had a stroke and you are working on your recovery, you probably don't like the term 'plateau'. ESPECIALLY, if someone told you that you were on a PLATEAU!
Let's see what this blogger says about the 'plateau'!
The aphasia therapy "plateau"
Let's see what this blogger says about the 'plateau'!
The aphasia therapy "plateau"
Sunday, March 27, 2011
Nova Scotia Aphasia Association's FIRST Fundraising: Success!
Hurray! The Nova Scotia Aphasia Association's FIRST fundraising was a success. We had 75 people who particated in our Trivia competition. We raised $1,000 to help to deliver our June 15 2011 event...'Hope is a four letter word'. Actually, that was the deposit that we needed for the event!
I believe that we can fill an 800-seat theatre with Nova Scotians who have aphasia, their families, neighbours, co-workers and their communities.
This is an excellent continuing education session for healthcare and community services professionals who work and support with people with aphasia...from an Aphasia Mentor!
Hope is a four letter word"
I believe that we can fill an 800-seat theatre with Nova Scotians who have aphasia, their families, neighbours, co-workers and their communities.
This is an excellent continuing education session for healthcare and community services professionals who work and support with people with aphasia...from an Aphasia Mentor!
Hope is a four letter word"
Live at 5 on Mon Mar 28, 2011 : Aphasia
CTV Live at 5 is doing a 'spot' on aphasia on Monday March 28, 2011. Watch Live at 5 around 5:10pm (Atlantic Standard Time). Kate and Craig interviewed Goddess Aphasiadite!
CTV is helping us to publicize aphasia and the birth of the Nova Scotia Aphasia Association. Right now, we are preparing for the 'labour' for the birth...must prepare for the labour pains! The Nova Scotia Aphasia Association is 'due' in June 2011.
Our BIG inaugural event for June 2011 is to have Carl McIntyre and 'Aphasia, the movie' come to Halifax, Nova Scotia on June 15 at 7:00. The venue will be the Spatz Theatre at the Citadel High School. We expected that there will be standing room only. Reserve your tickets early!
Reserve tickets at nsaa@bellaliant.net
Hope is a four letter word"
CTV is helping us to publicize aphasia and the birth of the Nova Scotia Aphasia Association. Right now, we are preparing for the 'labour' for the birth...must prepare for the labour pains! The Nova Scotia Aphasia Association is 'due' in June 2011.
Our BIG inaugural event for June 2011 is to have Carl McIntyre and 'Aphasia, the movie' come to Halifax, Nova Scotia on June 15 at 7:00. The venue will be the Spatz Theatre at the Citadel High School. We expected that there will be standing room only. Reserve your tickets early!
Reserve tickets at nsaa@bellaliant.net
Hope is a four letter word"
Tuesday, February 15, 2011
Squelching Tinnitus Baseline
Yankee Echo Alpha Hotel!
That's YEAH! in the phonetic alphabet...I passed my marine radio operating course last week! I can learn NEW things!!!!!
When I was at the course and we were learning how to set-up the radio...switch on radio, select channel AND Adjust squelch and volume, I started to think...hey, this would be cool if we could do this with our tinnitus baseline! (I know, it's not a good idea daydreaming in class but I'm creative!)
I didn't know what the word squelch meant, at first. Squelch means suppress in this scenario. In the Maritime Radio Course Student's Notes(Canadian Power & Sail Squadrons), the authors explains...
"Think of the squelch control as a gate. If the squelch control is turned fully clockwise, it closes the gate so much that no signals get through. If the squelch control is turned fully counterclockwise, it opens the gate so wide that everything get through - noise, weak signals and strong signals. To set the "squelch gate" to the desired level, the squelch control is turned counterclockwise until noise (hash) is heard. Then the squelch control is turned back clockwise just until the noise stops. Now the squelch is set properly and only strong signals will get through."
Think about it! If you have tinnitus, how cool to have a squelching gate that you could adjust for hash
(noise and distractions) in your head! So, you could focus on the noise from without...whether it is conversation, lecture or presentation OR listening to your spouse/partner.
If we had a squelching gate we would have to be careful about the hash levels...IF we close the gate so much that NO signals get through...
BUT, how cool to have a vacation from tinnitus!
The rules of the marine radio operators would be perfect for rules of communication with ANY person (especially for spouses/partners)! :)
Because, everyone has distractions, hash, noise in their heads with THEIR thoughts!
Rules for communication:
1. Switch the radio on > Get the attention of the person who you want to listen to you.
2. Select channel > Tune in to the person.
3. Adjust squelch and volume > Turn down distractions (TV, the kids,music and noise in your head) FOCUS!
4. Listen (always listen twice as long as you think is necessary) > Instead of reacting as soon the communication partner says anything...wait until you are finished. Then, speak.
That's YEAH! in the phonetic alphabet...I passed my marine radio operating course last week! I can learn NEW things!!!!!
When I was at the course and we were learning how to set-up the radio...switch on radio, select channel AND Adjust squelch and volume, I started to think...hey, this would be cool if we could do this with our tinnitus baseline! (I know, it's not a good idea daydreaming in class but I'm creative!)
I didn't know what the word squelch meant, at first. Squelch means suppress in this scenario. In the Maritime Radio Course Student's Notes(Canadian Power & Sail Squadrons), the authors explains...
"Think of the squelch control as a gate. If the squelch control is turned fully clockwise, it closes the gate so much that no signals get through. If the squelch control is turned fully counterclockwise, it opens the gate so wide that everything get through - noise, weak signals and strong signals. To set the "squelch gate" to the desired level, the squelch control is turned counterclockwise until noise (hash) is heard. Then the squelch control is turned back clockwise just until the noise stops. Now the squelch is set properly and only strong signals will get through."
Think about it! If you have tinnitus, how cool to have a squelching gate that you could adjust for hash
(noise and distractions) in your head! So, you could focus on the noise from without...whether it is conversation, lecture or presentation OR listening to your spouse/partner.
If we had a squelching gate we would have to be careful about the hash levels...IF we close the gate so much that NO signals get through...
BUT, how cool to have a vacation from tinnitus!
The rules of the marine radio operators would be perfect for rules of communication with ANY person (especially for spouses/partners)! :)
Because, everyone has distractions, hash, noise in their heads with THEIR thoughts!
Rules for communication:
1. Switch the radio on > Get the attention of the person who you want to listen to you.
2. Select channel > Tune in to the person.
3. Adjust squelch and volume > Turn down distractions (TV, the kids,music and noise in your head) FOCUS!
4. Listen (always listen twice as long as you think is necessary) > Instead of reacting as soon the communication partner says anything...wait until you are finished. Then, speak.
Picturing Aphasia Trailer
This is cool...it is a trailer that uses pictures to describe the 'talk' about aphasia...
Picturing Aphasia Trailer
Picturing Aphasia Trailer
Thursday, February 10, 2011
The Crickets: Battle with the Peeping Frogs
Tinnitus! The noise that sounds like ringing in the head or deafening noise in the head...I think it is in my head...sometimes I can't hear my thoughts. Tinnitus doesn't have a cure, so I decided to make friends with the 'crickets' in my head. Tinnitus made itself known after my left side brain was attacked by a clot that affected my auditory cortex.
When I'm tired...or my brain is tired...usually when I'm using language (talking or listening)...the 'crickets' explode in my auditory cortex! Now, it seems that the crickets might have to battle the 'peeping frogs'. You know how loud the peeping frogs are! Can they neutralize the crickets? Maybe!
There have been studies on rats that show that playing tones could reverse tinnitus. I don't know how researchers know that the rats have tinnitus...because people can't hear what I'm hearing in my head...because there is NOT sound or noise!! :)
What is the problem with the neurons in the auditory cortex that makes them be excitable anyway? It's almost like they are spooked by ghosts...where there is NO sound they perceive sounds! AND, we have NOISE in our heads!
Anyway, this is hope for tinnitus sufferers. Way to go Micheal Kilgard and your colleagues at the University of Texas in Dallas, we're waiting for you to make the crickets go away! I hope they have counselling for the rats thin the control group!
Still, "this is a good stepping stone," Tyler said. "It's an exciting step forward, and it will be interesting to see what happens with the humans." (Fighting noise with noise - The Scientist - Magazine of the Life Sciences)
Stay tuned to the battle of the crickets and the peeping frogs!
Read more: Fighting noise with noise - The Scientist - Magazine of the Life Sciences
When I'm tired...or my brain is tired...usually when I'm using language (talking or listening)...the 'crickets' explode in my auditory cortex! Now, it seems that the crickets might have to battle the 'peeping frogs'. You know how loud the peeping frogs are! Can they neutralize the crickets? Maybe!
There have been studies on rats that show that playing tones could reverse tinnitus. I don't know how researchers know that the rats have tinnitus...because people can't hear what I'm hearing in my head...because there is NOT sound or noise!! :)
What is the problem with the neurons in the auditory cortex that makes them be excitable anyway? It's almost like they are spooked by ghosts...where there is NO sound they perceive sounds! AND, we have NOISE in our heads!
Anyway, this is hope for tinnitus sufferers. Way to go Micheal Kilgard and your colleagues at the University of Texas in Dallas, we're waiting for you to make the crickets go away! I hope they have counselling for the rats thin the control group!
Still, "this is a good stepping stone," Tyler said. "It's an exciting step forward, and it will be interesting to see what happens with the humans." (Fighting noise with noise - The Scientist - Magazine of the Life Sciences)
Stay tuned to the battle of the crickets and the peeping frogs!
Read more: Fighting noise with noise - The Scientist - Magazine of the Life Sciences
Saturday, January 29, 2011
"Aphasia" the Movie
"Aphasia" the movie is the true story of...."actor Carl McIntyre who, after suffering a massive stroke and losing his ability to read, write and talk,
struggles against overwhelming odds to redefine his life."
The movie trailer is here! Aphasia
Watch for it in your area.
struggles against overwhelming odds to redefine his life."
The movie trailer is here! Aphasia
Watch for it in your area.
Monday, January 24, 2011
Treadmill: Trigger for Seizures?
Okay, two weeks ago I had a seizure on the treadmill. Last March, I had a seizure in church. Survey says...church and the gym aren't healthy for you IF you are prone for post-stroke seizures!
I'm kidding of course. I'm sure that I could make an excuse to stop exercising and not go to church! Clearly, it's not good for my health! :)
Perhaps, IF I were scared to live my life seizure-free, I could make a case that I would be better IF I never did anything IF I was neurotic! Sounds stupid, doesn't it? Sometimes, that's how we function in our world...neurosis driven!
Often, we worry and worry and worry when there is nothing to worry about!
UNTIL..."Today is the tomorrow we worried about yesterday." Author Unknown
SO..."For peace of mind, resign as general manager of the universe." Author Unknown
"If things go wrong, don't go with them." Roger Babson
That's it for worry!
Actually, when I had my first post-stroke seizure, I was "pissed" at the Rehab Centre...Why didn't they tell me that I MIGHT have a post-stroke seizure...30% (estimate)chance that I could have a seizure! So,..hmmm...what should I do??? Worry about having a seizure?
I was talking with a friend about post-stroke seizures and my seizure experiences and she said that perhaps telling people who had a stroke that they MIGHT have a seizure MIGHT serve them...perhaps knowing that would worry them so they MIGHT suffocate their life's joys and experiences (OR their care-givers' life) because of WORRY! When, chances of having a seizure-free life is about 70%! Did you know that even though you have a normal brain, 10% of you will have ONE seizure in your life (see link below)? Are you worried about that? 90% of people will NOT have a seizure! YEAH!!!!
Worry..."MIGHT"...Power...hmmm....you decide!
What IS a seizure? Seizure definition: Uncontrolled electrical activity in the brain between cells within the brain. The type and symptoms depends where the electrical activity is in the brain, what the cause is (infection, fever, head trauma, etc.) and factors such as age and general state of health. Symptoms can present as "brief loss of consciousness to uncontrollable jerking of a leg, arm, or the entire body".
If you have a cause for recurring seizures...post-stroke seizures and brain injuries by head trauma OR epilepsy even though you take medications for seizures...what could be triggers for your seizures? So, you know what is safe and what is NOT safe IF you have recurring seizures.
Triggers for seizures
(NO, treadmills and church are NOT triggers for seizures :))
- alcohol and recreational drugs (what about my wine!)
- late nights and lack of sleep
- stress
- missing dose of anti-seizure (or anti-epilepsy) medication
- flickering or flashing light (NO, disco-dancing??)
- illness (fever)
- Menstrual cycle hormones (I love being a woman!)
- Food/fasting
- Certain medications and supplements
I love wine (and sometimes cold beer). Does that means I can't drink a glass of wine? Talk with your neurologist. My neurologist suggested that a glass of wine (or two) is safe without being a trigger for seizures and without affecting my anti-seizure medication.
In fact, alcohol increases your seizure threshold, BUT when the alcohol withdrawal decreases your seizure threshold, especially when you have high dose (too many drinks) or frequency (too many parties) of alcohol. IF, you have 1-2 drinks/event and no more 3 events in a week, You are probably okay...without having a seizure…I mean. (see reference below)
Having a seizure is scary (both for you and people that see YOU having a seizure). What can you do for preparing IF you know (sometimes you know) you are going to have a seizure.
My “style” of seizure is tonic-clonic seizures focused on my stroke-affected side …meaning that my right-side starting jerking from my thumb to my hand to my arm to my leg and finally my head. I am conscious and alert, so I know what noises that making, but not in control of my body. I’m alert, therefore, when my head starts jerking, I think, “God, I can do this”, but I have no choice!
The GOOD thing (so far) is one sign that I’m having a seizure…my thumb jerking! So, when I was on the treadmill, I had time to turn it off (but I didn’t clean it), go to the front desk, ask for a private room and take my place on the floor, rolled on my side in the recovery position…I was safe. AND, Square helped me. If, the person that I’m with hasn't experienced me having a seizure, make sure they aren't alarmed. I am in control of my seizure...well, not really, your brain is...but, I control the preparation for my seizure.
Get in the recovery position and go for it! Sounds simple but I dread having a seizure!
Some people who have tonic-clonic seizures might NOT have a sign and drop to the ground without notice…THAT would be MORE scary for people around AND NOT safe for the person having a seizure.
IF you are a friend, relative, care-giver or even a stranger passing by, learn the first aid recovery position for injured person (see the link below for the reoovery position).
Don’t interfere with the seizure…it has it’s own mind…don’t fight it! Your role is to make the area safe FOR the person who is taking a seizure. And, time the seizure. If the seizure lasts for more 5 minutes call 911.
Her bladder (and bowels) might let go during the seizure…be aware of the embarrassment that she is going through…is there a jacket or blanket that you could put on her.
If the person is not on her side during the seizure, AFTER the seizure passes through, roll her to the recovery position (see below for a link for the recovery position). The recovery position can open the airway for her. There is another link below that discusses first aid for tonic-clonic.
WHEW...that is a lot of information...I'm tired, what about you?
It's funny, how our minds think...when I got my sign of my seizure...I turned off the treadmill and told my friend, "Square", that I was going to have a seizure. So, we jump off the treadmill to the front desk to find a private room/area. SO, we didn't clean our treadmills...what would other members say? "Those are the women that don't clean their equipment"...we are now "those" woman. Square was bothered by that...so, when I took my place on the floor in the recovery position, Square asked me if I was okay, then raced back to the treadmills to clean them! Way to go Square, we wouldn't be "those" women!
LINKS:
Seizure Triggers
Seizure Facts
First Aid for tonic-clonic seizures
Recovery Position
REFERENCES:
Gordan E and Devinsky O. Alcohol and Marijuana: Effects on Epilepsy and Use by Patients with Epilepsy. Epilepsy 42(10): 1266-1272, 2001.
"Patients with epilepsy should therefore be allowed to use alcohol in small amounts (one to two drinks/occasion), no more than three to six drinks/week)."
I'm kidding of course. I'm sure that I could make an excuse to stop exercising and not go to church! Clearly, it's not good for my health! :)
Perhaps, IF I were scared to live my life seizure-free, I could make a case that I would be better IF I never did anything IF I was neurotic! Sounds stupid, doesn't it? Sometimes, that's how we function in our world...neurosis driven!
Often, we worry and worry and worry when there is nothing to worry about!
UNTIL..."Today is the tomorrow we worried about yesterday." Author Unknown
SO..."For peace of mind, resign as general manager of the universe." Author Unknown
"If things go wrong, don't go with them." Roger Babson
That's it for worry!
Actually, when I had my first post-stroke seizure, I was "pissed" at the Rehab Centre...Why didn't they tell me that I MIGHT have a post-stroke seizure...30% (estimate)chance that I could have a seizure! So,..hmmm...what should I do??? Worry about having a seizure?
I was talking with a friend about post-stroke seizures and my seizure experiences and she said that perhaps telling people who had a stroke that they MIGHT have a seizure MIGHT serve them...perhaps knowing that would worry them so they MIGHT suffocate their life's joys and experiences (OR their care-givers' life) because of WORRY! When, chances of having a seizure-free life is about 70%! Did you know that even though you have a normal brain, 10% of you will have ONE seizure in your life (see link below)? Are you worried about that? 90% of people will NOT have a seizure! YEAH!!!!
Worry..."MIGHT"...Power...hmmm....you decide!
What IS a seizure? Seizure definition: Uncontrolled electrical activity in the brain between cells within the brain. The type and symptoms depends where the electrical activity is in the brain, what the cause is (infection, fever, head trauma, etc.) and factors such as age and general state of health. Symptoms can present as "brief loss of consciousness to uncontrollable jerking of a leg, arm, or the entire body".
If you have a cause for recurring seizures...post-stroke seizures and brain injuries by head trauma OR epilepsy even though you take medications for seizures...what could be triggers for your seizures? So, you know what is safe and what is NOT safe IF you have recurring seizures.
Triggers for seizures
(NO, treadmills and church are NOT triggers for seizures :))
- alcohol and recreational drugs (what about my wine!)
- late nights and lack of sleep
- stress
- missing dose of anti-seizure (or anti-epilepsy) medication
- flickering or flashing light (NO, disco-dancing??)
- illness (fever)
- Menstrual cycle hormones (I love being a woman!)
- Food/fasting
- Certain medications and supplements
I love wine (and sometimes cold beer). Does that means I can't drink a glass of wine? Talk with your neurologist. My neurologist suggested that a glass of wine (or two) is safe without being a trigger for seizures and without affecting my anti-seizure medication.
In fact, alcohol increases your seizure threshold, BUT when the alcohol withdrawal decreases your seizure threshold, especially when you have high dose (too many drinks) or frequency (too many parties) of alcohol. IF, you have 1-2 drinks/event and no more 3 events in a week, You are probably okay...without having a seizure…I mean. (see reference below)
Having a seizure is scary (both for you and people that see YOU having a seizure). What can you do for preparing IF you know (sometimes you know) you are going to have a seizure.
My “style” of seizure is tonic-clonic seizures focused on my stroke-affected side …meaning that my right-side starting jerking from my thumb to my hand to my arm to my leg and finally my head. I am conscious and alert, so I know what noises that making, but not in control of my body. I’m alert, therefore, when my head starts jerking, I think, “God, I can do this”, but I have no choice!
The GOOD thing (so far) is one sign that I’m having a seizure…my thumb jerking! So, when I was on the treadmill, I had time to turn it off (but I didn’t clean it), go to the front desk, ask for a private room and take my place on the floor, rolled on my side in the recovery position…I was safe. AND, Square helped me. If, the person that I’m with hasn't experienced me having a seizure, make sure they aren't alarmed. I am in control of my seizure...well, not really, your brain is...but, I control the preparation for my seizure.
Get in the recovery position and go for it! Sounds simple but I dread having a seizure!
Some people who have tonic-clonic seizures might NOT have a sign and drop to the ground without notice…THAT would be MORE scary for people around AND NOT safe for the person having a seizure.
IF you are a friend, relative, care-giver or even a stranger passing by, learn the first aid recovery position for injured person (see the link below for the reoovery position).
Don’t interfere with the seizure…it has it’s own mind…don’t fight it! Your role is to make the area safe FOR the person who is taking a seizure. And, time the seizure. If the seizure lasts for more 5 minutes call 911.
Her bladder (and bowels) might let go during the seizure…be aware of the embarrassment that she is going through…is there a jacket or blanket that you could put on her.
If the person is not on her side during the seizure, AFTER the seizure passes through, roll her to the recovery position (see below for a link for the recovery position). The recovery position can open the airway for her. There is another link below that discusses first aid for tonic-clonic.
WHEW...that is a lot of information...I'm tired, what about you?
It's funny, how our minds think...when I got my sign of my seizure...I turned off the treadmill and told my friend, "Square", that I was going to have a seizure. So, we jump off the treadmill to the front desk to find a private room/area. SO, we didn't clean our treadmills...what would other members say? "Those are the women that don't clean their equipment"...we are now "those" woman. Square was bothered by that...so, when I took my place on the floor in the recovery position, Square asked me if I was okay, then raced back to the treadmills to clean them! Way to go Square, we wouldn't be "those" women!
LINKS:
Seizure Triggers
Seizure Facts
First Aid for tonic-clonic seizures
Recovery Position
REFERENCES:
Gordan E and Devinsky O. Alcohol and Marijuana: Effects on Epilepsy and Use by Patients with Epilepsy. Epilepsy 42(10): 1266-1272, 2001.
"Patients with epilepsy should therefore be allowed to use alcohol in small amounts (one to two drinks/occasion), no more than three to six drinks/week)."
Wednesday, January 19, 2011
Happy New Year!
I'm feeling grateful!
Grateful for the circumstances that my stroke has given to me. You may not understand why, but I am grateful.
The other day, when I realized that my friend wasn't listening to me, I said (in my head) "Wow, I used to do that too!" I had a Type A personality...busy being busy! When I was talking with friends, relatives and colleagues, sometimes I wasn't listened to them...sorry...it's true. I kinda was listening but not enough so that I was feeling and respecting your thoughts and ideas. I was deciding what I was going to say when I could break into YOUR monologue. My brain was firing all the time when you were talking, planning MY monologue! Multi-tasking all the time, thinking that we are being more productive...not so...research (Multi-tasking Madness).
My brain shouldn't have firing while you were talking...my brain should have been soaking with YOUR thought and ideas. I'm sorry that I didn't respect your thoughts, feeling and ideas. Forgive me.
NOW, I can't multi-tasked, because of the stroke of genius! When, I talking with you, I am listening. My brain auditory cortex is firing focusing on listening, so I am feeling your words, soaking up your feelings, thoughts and ideas. I respect YOU. Great eh?
I hope that the Universe doesn't slap you upside the head with a clot ...be smarter than I was! Learn to be respectful!
Articles to think about:
Multi-Tasking Madness
Believe It: Multitasking Reduces Productivity And That's Not All
Grateful for the circumstances that my stroke has given to me. You may not understand why, but I am grateful.
The other day, when I realized that my friend wasn't listening to me, I said (in my head) "Wow, I used to do that too!" I had a Type A personality...busy being busy! When I was talking with friends, relatives and colleagues, sometimes I wasn't listened to them...sorry...it's true. I kinda was listening but not enough so that I was feeling and respecting your thoughts and ideas. I was deciding what I was going to say when I could break into YOUR monologue. My brain was firing all the time when you were talking, planning MY monologue! Multi-tasking all the time, thinking that we are being more productive...not so...research (Multi-tasking Madness).
My brain shouldn't have firing while you were talking...my brain should have been soaking with YOUR thought and ideas. I'm sorry that I didn't respect your thoughts, feeling and ideas. Forgive me.
NOW, I can't multi-tasked, because of the stroke of genius! When, I talking with you, I am listening. My brain auditory cortex is firing focusing on listening, so I am feeling your words, soaking up your feelings, thoughts and ideas. I respect YOU. Great eh?
I hope that the Universe doesn't slap you upside the head with a clot ...be smarter than I was! Learn to be respectful!
Articles to think about:
Multi-Tasking Madness
Believe It: Multitasking Reduces Productivity And That's Not All
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