The purpose of this study conducted by Henckley, Hasselkus and Ganzfried was to see what perceptions people living with aphasia were on resources and information needs.
An online survey of was conducted in the U.S. There was 302 survey respondents. The responses and comments framed questions to discuss with four focus groups of people has aphasia and their caregivers.
Focus groups discussions showed the need for information and resources:
"in the early stages from health care workers and the continuing needs in later stages from community resources such as support groups or other sources".
Survey conclusions confirmed that people living with aphasia "do not receive all of the information that they would like". Public awareness of aphasia is a barrier for finding information and resources.
June is Aphasia Awareness month. Let's do our part to educate the public!
For more information, read the article abstract: What People Living With Aphasia Think About the Availability of Aphasia Resources
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